shareyourstory

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Share your story: A second opinion helps.

David is the son of Henry a doting father who has no doubt figured out the secret of living a peaceful life in spite of challenges. Meeting them for a share your story session is a real pleasure. David was not born with epilepsy. His seizures started after he had a fall while playing with [...]

By | October 23rd, 2018|shareyourstory|0 Comments

Seizure Free at last

Bouncing Back: Anthony’s story I was living a normal life as a bus driver for a catholic school. I also was achieving as an administrator handling cash receipts and deposits. I was also overseeing the casual laborers in the school. I would pick up the pupils in the morning and drop them off in the [...]

By | September 25th, 2018|shareyourstory|9 Comments

Daniel Melanta

Attitude is all that matters. To Daniel, epilepsy is not really an issue to be deliberated on, turned around and wondered at. It is what it is, thus the question is, what do we do from here? Friendship is based on open and honest communication, not putting up appearances, so no sooner we start talking [...]

By | July 3rd, 2018|shareyourstory|0 Comments

Share your Story: Dan Okello

Mr Daniel Otieno Okello, a lead volunteer at KAWE's Huruma Mathare Epilepsy clinic had his first seizure at the age of 13. He didn’t quite understand what it was since he only remembered being on an errand, then waking up on his bed later. Some friends explained he had had started to shake then fallen [...]

By | September 19th, 2017|shareyourstory|3 Comments

A Parent’s Journey: John Munuve Mutio.

To all the fathers who stayed in spite of things. In celebration of  father's day, we caught up with a father who stands above the rest in support of his daughter who has epilepsy. John Munuve Mutio is the father of Lilian Ndinda, one of our patients at Mathare Huruma Lions clinic. We [...]

By | June 19th, 2017|shareyourstory, Uncategorized|0 Comments

MY JOURNEY WITH EPILEPSY

  In her own words: Vallent Athiambo In the year 1990 on 23rd of January on a Saturday at around mid day, a beautiful baby girl was born in mission hospital in Migori District now in Migori County. As usual the parents and relatives were very happy and grateful to God but the mum’s joy [...]

By | May 10th, 2017|shareyourstory|2 Comments

Winfred’s tight battle against Stigma towards epilepsy

As a person living with epilepsy, Winfred Wanja  has faced every kind of stigma in the book. She was shunned by people even before she knew she had epilepsy and on confirmation, more people exited from her life. A mother of two, what keeps her going is the knowledge that God knows her situation, and [...]

By | April 7th, 2017|shareyourstory, Uncategorized|0 Comments

Alex Muli is Putting Epilepsy in the Picture

In commemoration of International Epilepsy Day, we asked people living with epilepsy, friends of KAWE to share their  story, in line with this year’s theme of putting epilepsy in the picture. After posting the story of Kabemba Mwale as featured in the Lusaka Times, we got responses from within Kenya from people leaving with epilepsy [...]

By | February 27th, 2017|shareyourstory|2 Comments

Kabemba Mwale is an epilepsy activist

Kabemba Mwale is an epilepsy activist , she shares her story below. “My name is Kabemba Mwale born 29th December 1982. I am the last born in a family of four children. I had my 1st seizure in 1991 on the 29th August. After my second seizure on Christmas Eve ,that same year, my parents [...]

By | February 16th, 2017|shareyourstory|5 Comments