Parents are the strong holds that hold together this team. In this case, Anne is one of those mothers that keep holding on.
In her own words:
Wangeci has had this condition since she was born. At the age of one and half years, we took her to a hospital and she was started on epilepsy medication. She however did not improve and would cry through the night while hitting her head on whatever surface she could find. In the next six months, we hopped from one hospital to the next doing tests and scans and experimenting different epilepsy drugs. At one point the convulsions increased and we had to be admitted in the hospital for a whole week, under the doctor’s observation. More tests followed after which her medication was changed once more.
My friend who was a social worker was working at the Riruta Epilepsy clinic and she asked me to bring my daughter. I was very relieved to learn about Wangeci’s condition and it helped me to take better care of her. We as care givers received counselling which helped me in ways I cannot express. In the hospitals I had been to before, no one had really taken time to explain what epilepsy is.
I also met Doris from Kifafa Foundation who sponsored my daughter to get into a special school in Subukia where she would be rehabilitated. Rehabilitation was necessary because she was quite aggressive.
Wangeci then joined Kiriko Special School in Gatundu North where she learnt beadwork.
She can now make bracelets and necklaces, but under supervision since she cannot count.
Though she is still on medication due to her convulsions, she is a happy girl who loves to spend time in her grandmother’s home. Despite needing assistance to walk she is very active and has her own program of activities. She can express herself in Kiswahili and is able to accomplish basic chores around the house. She however cannot be left alone outside the house due to her frequent attacks which have resulted in injuries to her knees and ankles.
Even though it has taken longer for her to reach milestones in comparison with her peers, she is way better than when we first came to KAWE.
On behalf of my daughter, and from me, I am very grateful to KAWE and the Kifafa Foundation for walking this journey with us. We are grateful for the drugs without which it would be very difficult for Wangeci to cope. The help you have provided has left a mark in our hearts.